Tag: ableism

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Social Media can help Neurodivergent People Make Friends

How online interactions can be easier for people with Executive Functioning Deficits

In a previous blog post I talked about how executive functioning skills are extremely important when interacting with others. Interacting online with people is one way to help mitigate some of these deficits.

The Scandinavian Journal of Disability Research published an interesting paper (“Exploring The Potential for Social Networking Among People with Autism: Challenging Dominant Ideas of ‘Friendship'” by C. Brownlow; H. Rosqvist and L. O’Dell) that addressed how online interactions are viewed by people with disabilities. The purpose of their study was to “deconstruct dominate understandings of (autistic) friendship”. They did this by reviewing previous literature on the subject and interviewing neurodivergent individuals. Many of the people interviewed for the paper provided very specific examples of how executive functioning skills posed a problem during in person interactions, but were lessened during online interactions. For instance:

  • Autistic individuals said that online interactions gave them the chance to look back at previous conversations, so they knew where to begin.
    • This not only helped them know where the conversation left off and how to pick it up again, but it also allowed them to look back at information about the person they were talking to.
    • Online interactions can help with deficits in working memory.
  • Autistic individuals also said that they were able to plan their responses better when they were interacting online there wasn’t the quick back and forth that is present in “in-person” interactions.
  • It is also easier to focus on online conversations because you just have to focus on the words.
    • Some people might say that you miss out on body language/facial expression/voice tone, which help in understanding another person. However, all those things can also get in the way because neurodivergent individuals spend so much of their time and energy focused on trying to interpret all that information.
    • In person interactions can feel like an overload, while online interactions don’t.

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Able-Bodied Tears

I have grown up with this idea that I need to be in the forefront. That my value is determined by my ability to be seen and noticed. Not only is this damaging for my mental health, but I also think it is against my new views and beliefs on disability justice.

            I work with neurodivergent individuals. I remember a time when I would talk about how “special” they were to me. I would cry and all of a sudden, the narrative shifted from one about disability to one about me. It seemed almost equivalent to white tears…maybe they were “abled tears” (Leah Lakshmi Piepzna-Samarasinha in “Care Work: Dreaming Disability Justice”). (For those not familiar with the term white tears, this is when white people start to cry when they are presented with information about racial injustice. While showing emotion isn’t bad, white people publicly crying about injustices done to BIPOC individuals shifts the attention to them and comforting them.) When I talked about the injustices done to my clients I would cry and the discussion was no longer about them and how to change systems/organizations- it was about me. It was about people comforting me and telling me how great I was and how patient I was. In addition to stopping the conversation, this also perpetuated the idea that I was this neurotypical savior, and I was sacrificing so much to help the poor disabled people.

            In an effort to change this mentally I have done a lot of reading in the area of disability justice and advocacy. I learned that if I want to be a disability advocate, that is not something that I get to decide. I don’t get to wear a disability justice shirt, throw some money at an organization and say “Look at me! I am a disability advocate”. No- the disabled people decide if I am an advocate. And if I am making the conversation about me and using them to make myself look better, then I am not being an advocate.

            One of the best ways for me to advocate for those with disabilities is to help lift their voices so that others can hear about their experiences. Specifically, this means that if I talk about what I learned from them I give them credit. I give them credit for talking about their lived experiences. I publicize what they have to say so that more people can be educated about the lived experiences of neurodivergent individuals.

            In order to be an advocate, I need to step back and get rid of this idea that my effectiveness and my worth is someone synonymous with how many people see me. Thus, I am going to start bringing attention to individuals with disabilities by quoting them, promoting their works and helping to increase their visibility.

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Emotional Labor

            Have you heard the term “emotional labor”? (This was a new one for me.) Emotional labor is the “mental and emotional work we do to maintain relationships with other people, whether that relationship is an intimate one, or simply coexisting with strangers in a public place” (Ada Hoffman). Emotional labor can include initiating interactions with friends, setting up activities, listening to someone talk and showing concern, being friendly to people at your place of work, etc. For some people this type of emotional labor is effortless, but for some people (especially those who are neurodivergent), this can take a lot of effort.

Image made by Betterlyf Wellness

            What I think us neurotypicals sometimes forget is that autistic folx are doing emotional labor all the time! Below are things that are considered emotional labor and can be extremely difficult and extremely easy for autistic folk. I am getting the following information from Ada Hoffman, an autistic writer. You can find more of her writing here.

  • Trying desperately to figure out people’s facial expressions, when reading faces doesn’t come naturally to you. (This and other items on the list are still emotional labour, even when they are unsuccessful. Building a bridge is still labour, even if the bridge falls down.)
  • Trying to figure out how to respond appropriately to a social situation, when actually you are baffled or just want to go away.
  • Trying REALLY HARD to organize your shit even though you have executive function problems.
  • Enduring sensory discomfort, like lights and noise and other people, so that you can do an important thing that unavoidably involves them (and everything does).
  • Suppressing types of stims that you know will bother people around you or otherwise draw unwanted attention.
  • Trying to figure out the appropriate way to say a potentially hurtful thing instead of just blurting it out.
  • Asking people explicitly how they are feeling or what they need, because you know it’s important and you know you won’t figure it out on your own. Working up your courage and asking even though you know some people are offended by being asked.
  • Asking for accommodations, especially in an environment that you’re not sure will take you seriously.
  • Working up the courage to do social interactions that you know will be exhausting but necessary.
  • Trying to figure out ways to do basic things like make friends or express your emotions safely, when the NT way of doing them makes no sense to you.
  • Dealing with the ableist things people do and say all day.
  • Dealing with anxiety, depression, trauma, OCD, and the MANY OTHER very common comorbid conditions of autism.

I am hoping as we start to realize that seemingly effortless things for neurotypical people take effort for neurodivergent people we will have more compassion and understanding. Below are some ways that I am going to try to show that compassion as a clinician.

  1. Simply teaching my clients to advocate for themselves is putting all of the responsibility for accommodations on them. Job sites, schools and other professionals need to be educated on how to offer accommodations without waiting for them to be necessary. And society as a whole needs to be reframe the idea that “accommodations” make someone less then.
  2. Simply teaching my clients to read body language and interpret facial cues is putting all of the responsibility of smooth social interactions on them. Neurotypical individuals can just as easily learn to be more concise with what they want and explain how they are feeling in clear terms instead of being cryptic. This would take a great load off of neurodivergent folx.
  3. Normalize stimming. Interviews with autistic folx indicates that stimming can be very self-soothing. So, if we try to take that away or tell them to stop we are also taking away a coping mechanism. It seems silly to me that just because neurotypicals find a stim “annoying” the neurodivergent individual is responsible for stopping in order to make the neurotypicals more comfortable. Neurotypicals can learn to be flexible.